Teeing It Up For A Good Cause

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SUGARLOAF TOWNSHIP -- Golfers hit the links in Luzerne County Saturday to help find a cure for a rare disease that affects children.

About 120 golfers took part in the third annual Beat M.P.S. Golf Tournament at Sugarloaf Golf Club.

M.P.S. also known as Sanfilippo disease, is a disorder that causes progressive brain damage in children.  Those with the disease are not expected to live into their teens.

The tournament raises money and awareness to help find a cure.

The event was organized by Carl Kapes, originally from the Hazleton area. Kapes has two sons with the rare disease. 

“By having these tournaments and getting folks out there really creates awareness, and then once we create awareness that we seek, and then that helps us find doctors or pharmaceuticals to help us find a cure,” Kapes said.

Kapes also climbed Mount Kilimanjaro this past winter in another effort to raise awareness about the disease. Currently there is no treatment or cure for M.P.S.

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